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Emily shares her experience of discovering she had epilepsy, including her struggles with recognising seizures and seeking diagnosis.
Emily: Initially, I couldn't pinpoint my first seizure as I went two years without realising they were unusual. Gradually, I noticed losing time and experiencing unconsciousness, leading me to seek answers.
Emily: I often confuse the feeling of an aura with nerves, impacting my daily life, such as during exams, where I've mistaken nervousness for an impending seizure.
Emily: Stereotypes about epilepsy, like seizures only occurring on the floor due to flashing lights, contribute to misconceptions. My seizures are different, requiring a different response.
Emily discusses her experiences with epilepsy, medication, and how it has affected her life and relationships.
Emily: I'm on 600 milligrams of carbamazepine, which has significantly reduced my seizures. Managing medication and its side effects has been a journey, but I'm hopeful for the future.
Emily: Epilepsy has changed my life, influencing decisions like disclosing my condition early on in new situations and adapting to restrictions and stereotypes.
Emily shares her aspirations and goals for the future, focusing on normalcy, understanding, and acceptance.
Emily: I aim to raise awareness about epilepsy and challenge misconceptions, advocating for understanding and support from others.
Emily: Despite the challenges, I'm nearly 15 months seizure-free and working towards a future where epilepsy doesn't define me, but rather empowers me to educate and inspire others.
